In the News
ME/CFS Research Foundation Is Investing 2.4 Million Euros In Seven New Research Projects
Europe’s largest privately funded research funding programme for ME/CFS is bolstering research into the development of treatments, biomarkers and the identification of disease mechanisms with seven new research projects.
‘I’m Exhausted’: A US Woman With Several Chronic Conditions Said Applying For Disability Benefits Is Overwhelming — X Can’t Agree On Whether The System Is The Problem
A TikTok creator's candid explanation of her medical conditions and frustration with applying for U.S. disability benefits was reposted on X by @Chicago_Goofies on July 23.
Axsome Advances AXS-14 Fibromyalgia Trial With New Long-Term Safety Update
The Phase 3 study “An Open-Label Study to Assess the Long-Term Safety and Efficacy of AXS-14 in the Management of Fibromyalgia” aims to track how safe and effective this drug is over a full year of use in real patients. The focus is on long-term symptom control, which matters because fibromyalgia is a chronic condition with few strong treatment options today.
Hartlepool Fibromyalgia Charity Shop Volunteers Devastated After Burglar Raided Till And Stole Their Holiday Money
Volunteers at a Hartlepool charity shop have spoken of their heartbreak after the store was raided by a burglar.
Aldergrove Thrift Store To Celebrate 20 Years
The Fibromyalgia Well Spring Foundation is preparing to celebrate its 20th anniversary as founder Cheryl Young also gets ready to share one of the organization’s most personal stories.
Video: ME/CFS Scandal Explainer
A number of academics, experts, and journalists have characterised the treatment of ME/CFS as a scandal, with George Monbiot going as far as calling it “the greatest medical scandal of the 21st-century”. This video from 2024 provides an introduction and overview, highlighting key events in the story.
Long Covid Kids Backs Mum Taking On Triathlon For Housebound Son
A mum is taking on the London T100 Sprint Triathlon to raise funds for Dorset-founded charity Long Covid Kids after her teenage son became housebound with Long COVID and ME/CFS.
Many Long COVID Patients Are Still Seeking Answers 6 Years On. Some Scientists Think Dopamine Might Be The Missing Piece
The findings could have implications not just for millions of people with long COVID, but also those with similar conditions like ME/CFS.
Darlington Woman Left Housebound Nine Months After Virus
A UK woman says she can no longer work or “even get groceries” after a viral infection left her bed-bound for six weeks.
Women Suffer More Severe Neurologic Symptoms From Long COVID Than Men, Researchers Find
The most common symptoms include brain fog, dizziness, blurred vision, tinnitus and muscle pain, according to research from Northwestern Medicine.
Thomas Gress ’27 Works To Find Therapy For ‘Elusive Chronic Disease’ In Undergraduate Research
For his first undergraduate research project at Elon University in the US, Thomas Gress ’27 is looking to make an impact on people suffering from chronic fatigue syndrome, including his own brother.
Access To Potential Long COVID Drugs Dwindles As Trials Falter
Drug manufacturers have quietly discontinued trials in long COVID and related illnesses, leaving patients in the lurch.