In the News
Hollywood Millennials Who Won't Stay Silent About Their Health Struggles
Many millennial Hollywood celebrities have perfectly represented the growing health trends of their generation, including Lady Gaga who lives with Fibromyalgia.
7 Incredible Fantasy And Science Fiction Authors With Disabilities To Read This Disability Pride Month
Reviews of seven books by disabled writers, including Susanna Clarke, who has ME/CFS. (The reviewer also has ME/CFS.)
Long COVID Disrupts Brain Dopamine
A study, published in eBioMedicine, from the Centre for Addiction and Mental Health (CAMH), suggests that Long COVID is a physical disorder of the brain's dopamine system.
What Can Professional Athletes Teach Us About Long COVID And Rest?
In this episode of the podcast Still Here, co-hosts Miles Griffis and Betsy Ladyzhets talk to British athlete Oonagh Cousins about developing severe Long COVID at the start of the pandemic, her years-long attempt to return to elite training, and the relapse that ultimately forced her retirement in 2022.
ME/Chronic Fatigue Syndrome: The Mysterious Illness Trapping People In Their Bodies
A video from New Zealand's Re: News.
5 Ways The Gut Microbiota May Shape Fibromyalgia Symptoms & Care
Across multiple investigations, patients with Fibromyalgia exhibit lower gut microbial diversity and altered bacterial composition compared with healthy controls. These changes have been associated with greater pain severity, fatigue, anxiety, and depressive symptoms, suggesting that microbiome patterns may reflect disease burden.
Unraveling Chronic Fatigue Syndrome: Insights From Top Scientist On Myalgic Encephalomyelitis
A video from TV news network France 24 English.
Canadian Court Backs Employer's Work From Home Refusal In Disability Accommodation Case
A Canadian worker with ME/CFS who asked to do her job from home and requested accommodation has been turned down by British Columbia's highest court which confirmed the employer’s refusal was not discrimination.
Repurposed Drugs Show Modest, Short-Term Benefit For Long COVID Fatigue
A multisite, open-label, randomized controlled trial has found that the anti-inflammatory drug colchicine and a combination antihistamine regimen of famotidine and loratadine produced small, short-lived reductions in fatigue among adults with long COVID. However, the anticoagulant rivaroxaban showed no benefit at all.
New Austrian Study: TRACK-PEM – Tracking And Analyzing Post-Exertional Malaise
From a post on Instagram by "cshvienna": Researcher Katharina Ledebur's project, "TRACK-PEM: Tracking and Analyzing Post-Exertional Malaise," funded by the Austrian Science Fund FWF, focuses on Post-Exertional Malaise (PEM) – the defining symptom of ME/CFS, characterized by a delayed worsening of symptoms that occurs after minimal physical or mental activity.
Agreement And Reliability Between The Two-Day 6-Minute Incremental Step Test And Two-Day Cardiopulmonary Exercise Test In Post COVID-19 Condition For Assessing Post-Exertional Malaise: The REVEAL-Study
Research published in PLOS One.
Charity Concerns Over Changes To ME Services
Changes to the services offered to people with myalgic encephalomyelitis (ME) - also known as chronic fatigue syndrome (CFS) - or Long Covid, are worrying, according to a leading UK charity.