In the News
Severe M.E. Week: Urgent UK Government Action Needed To Stop Neglect And Hidden Harm
As Severe M.E. Week 2026 begins, social enterprise M.E. Foggy Dog is issuing an urgent warning: people living with severe Myalgic Encephalomyelitis (M.E.) are facing systemic neglect within the NHS, and without decisive Government intervention, thousands will continue to suffer preventable harm.
US Congress Has A Plan To Help People With Chronic Fatigue Syndrome. It Needs To Fund It.
An article by long-COVID and ME/CFS sufferer Amy Blackstone.
Genetic Study Of Fibromyalgia Reveals A Surprising Link To Huntington's
Now scientists have conducted a genetic analysis of over 2.5 million people, including 55,000 fibromyalgia patients. This work, which was reported in Nature Medicine, found genetic variants that are linked to fibromyalgia, and evidence that the nervous system is involved in fibromyalgia development.
Wokingham Woman’s Decade-Long Fight Ends As Landmark Fibromyalgia Study Brings Hope
Having lived with the condition since her early teens, UK Fibromyalgia sufferer Bethan Bourne has commented on a new landmark study that has for the first time identified the genetic risk factors of the disease.
The Great Mimickers: Navigating Diagnostic Pitfalls In Modern Rheumatology
Rheumatological mimics frequently cause diagnostic errors and unnecessary immunosuppression due to overreliance on positive serology or non-specific imaging. This review evaluates eight illustrative cases where initial objective findings heavily conflicted with the final, etiology-driven diagnosis.
Video: Channel 5 News | Long Covid Children | Five Years On
Five years after first reporting on children with Long Covid, Five News reporter Ruth Liptrot revisits Samir, Emily and other families to see what has changed. The report examines the continuing impact of Long Covid on young people in the UK and the lack of NHS support, as families describe feeling abandoned by the health service.
Alternative Therapy 'Wormhole' Killed My Cousin, Says Author Hannah McElhinney
Author Hannah McElhinney spent years investigating after her cousin Lauren died seeking controversial medical treatment overseas.
'Day-To-Day Living Was A Struggle': Sunderland Chronic Fatigue Sufferer Publishes Charity Anthology
A chronic fatigue sufferer from Sunderland in the UK has released a charity anthology to help raise money and awareness of a debilitating condition.
Researchers Find Genetic Link Between Fibromyalgia And Huntington’s
A study of more than 2.5m adults has identified a genetic link between fibromyalgia and Huntington’s disease.
Study Finally Confirms ‘Pain Processing’ Problem For 2 Million With Fibromyalgia
A study from Kings College London has finally proven that fibromyalgia – a syndrome effecting between 1.5 to 2 million people in the UK – has a clear, biological basis, debunking the dismissive claims that it was purely psychological.
Post-Covid Fatigue Not Just Caused By Inactivity, Study Finds
Patients with post-Covid syndrome suffer muscle damage that cannot be fully be explained by inactivity, research led by scientists at Amsterdam’s Vrije Universiteit (VU) has found.
Yale Scientists Gain New Insight Into Genetic Architecture Of Fibromyalgia
Using data from large biobanks, Yale scientists have gained new insight into the genetic architecture of fibromyalgia, a chronic disorder that affects the quality of life of around 3% of the world’s population.